Privacy Policy

We may collect the following types of personal information

• name;
• mailing or street address;
• email address;
• telephone number and other contact details;
• age or date of birth;
• information about your lifestyle, general health, family history and medical information including in relation to your inflammatory bowel disease, that you provide to us directly through your use of our CCCare system or indirectly through your medical service providers from whom you permit us to collect information;
• any additional information relating to you that you provide to us:
  
  • any other personal information, or sensitive information, that may be required in order to facilitate your dealings with us or in relation to your care.
  • directly through your participation in specific Human Research Ethics approved research work where data is held by CCC; and
  • directly through our CCCare system or indirectly through your use of our CCCare system or through other websites or accounts from which you permit us to collect information; and
• any other personal information, or sensitive information, that may be required in order to facilitate your dealings with us or in relation to your care.

We may collect these types of personal information either directly from you, or from third parties. We may collect this information when you:

• register with a medical service provider and consent to your medical service provider’s use of our CCCare system (including during routine or virtual occasions of care with your medical, nursing, dietetic or other IBD clinical or support staff at your IBD care location – as would be routinely documented for adherence to good clinical documentation standards);
• directly register on our CCCare system;
• communicate with us through correspondence, by telephone, email, or when you share information with us from other social applications, services or websites; or
• interact with our CCCare system, sites, services, content and advertising.

We may collect, hold, use and disclose your personal information for the following purposes:

• to enable and facilitate your medical service provider’s use of the CCCare system and their provision of health care services to you using the CCCare system;
• to de-identify your personal information, which may then be used and disclosed for research purposes and/or on a commercial basis as described in this Privacy Policy;
• to enable you to access and use our website, services and the CCCare system;
• to operate, protect, improve and optimise our services, the CCCare system and our users’ experience, and to perform analytics;
• to send you service, support and administrative messages, reminders, technical notices, updates, security alerts, and information requested by you;
• to comply with our legal obligations, resolve any disputes that we may have with any of our users, and enforce our agreements with third parties;
• to provide you with technical software support.

We may disclose personal information in identified form, on a confidential basis, for the purposes described in this Privacy Policy to:

• specific third parties authorised by you to receive information held by us, including your medical service providers and the relevant institutions
  where you receive your care (hospitals and universities);
• other persons, including government agencies, regulatory bodies and law enforcement agencies, or as required, authorised or permitted by law;
• our employees and related bodies corporate;
• third party suppliers and service providers (including providers for the operation of our CCCare system, websites and/or our business or in connection with providing our services to you); and
• professional advisers, dealers and agents.

We may disclose:

• your personal information collected in Australia to the third parties described above which are located in New Zealand; and
• your personal information collected in New Zealand to the third parties described above which are located in Australia, for the purposes described in this Privacy Policy. Otherwise, we will not generally disclose your personal information to recipients outside of Australia or New Zealand.